Some opportunities happen only once in a lifetime - like a job where you have the chance to change lives. At Alexion, people living with rare and devastating diseases are our Guiding Star. We are driven to continuously innovate and create meaningful value in all we do to help patients and families fully live their best lives. We value the uniqueness and diversity of our employees and recognize that nurturing the diverse perspectives and strengths of our people translates into innovative breakthroughs for patients.
Director, Patient Advocacy Iberia (Spain and Portugal)
Location: Barcelona
Reporting to Head of International Patient Advocacy, this position is part of Alexion's Global Patient Experience team. The Director, Patient Advocacy Iberia (Spain and Portugal) will be responsible for leading the patient advocacy function in this market, driving, building and enhancing strategic alliances with both disease-specific patient organizations and their umbrella groups, as well as other rare/ultra-rare disease-oriented organizations in this market in response to patient needs and in support of Alexion's global patient advocacy and medical objectives and related strategic goals.
The Director, Patient Advocacy Iberia will actively contribute to advancing Alexion's corporate goals with our current and future assets driving strategic advocacy engagement from a portfolio perspective seeking meaningful and systematic partnership with patient groups and communities all along the therapy life-cycle. The Director, Patient Advocacy Iberia will support the patient journey including accelerating the time to diagnosis, disease education and resources, treatment advances, and providing caregiver support to improve health outcomes. Through understanding of the patient community, this individual will bring the patient perspective into Alexion Spain's decision making.
Job Duties & Responsibilities
Shape and execute the patient advocacy strategy and plans in Spain and Portugal aligning the global/international advocacy strategy with local priorities and goals working closely with the GM and the other functions' heads representing medical affairs, market access, commercial, government affairs, corporate communications, R&D, as well as Regulatory, Legal and Compliance.
Actively contribute to the mission of Alexion Global and international patient advocacy team, help advance on our collective goals and ambition promoting cross-country sharing of good practices and effective cross-fertilization of ideas and opportunities.
Drive, build and enhance strategic long-term alliances and partnerships with relevant patient advocacy organizations both disease-specific and relevant umbrella groups as well as other rare/ultra-rare disease-oriented organizations.
Represent Patient Advocacy as a member of the Spain Leadership Team being a champion for patient centricity while contributing as an enterprise leader helping achieve our affiliate's goals and objectives, championing Alexion's values and contributing to shaping and advancing our organizational culture.
Partner with the therapeutic area leads, medical directors, and brand teams to ensure patient advocacy strategies and actions are seamlessly integrated in disease plans from early planning through to execution making sure patients' insights effectively inform strategies and plans.
Contribute to local launch plans and implementation of early access programs ensuring the patient perspective remains central to our strategies and plans are adequately informed by genuine patient insights.
Link appropriate patient groups with the information and resources needed to support patients and caregivers to advocate for appropriate care. Establish meaningful, long term relations and build a sense of community and collaboration among these groups and with Alexion.
In collaboration with appropriate Government Affairs and Market Access, support the advancement of policy positions that embrace open access to medicine, appreciation of innovation and the importance of optimal treatment, while promoting the recognition of patients and patient groups as equal stakeholders in the local healthcare ecosystem, including in the HTA process and access discussions.
Champion and drive early and meaningful engagement of patients and patient groups in all Alexion key research and development programs working closely with the clinical operations and medical team to ensure programs and clinical trials are systematically informed by patient input and insights while supporting clinical trials awareness and recruitment.
Serve as a liaison to the rare disease community by working appropriately with global and international colleagues on cross-disease initiatives while prioritizing engagement on disease-specific work and ensuring coordinated outreach.
Contribute to collection of patient and family insights and proactively and routinely share insights from patient advocacy groups.
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