Rare Disease, Global / Eu Advocacy Relations Associate Director

.If you feel like you're part of something bigger, it's because you are. At Amgen our shared mission—to serve patients—drives all that we do. It is key to our becoming one of the world's leading biotechnology companies. We are global collaborators who achieve together—researching, manufacturing, and delivering ever-better products that read over 10 million patients worldwide. It's time for a career you can be proud of. Join us.Currently, we are looking for an Global/EU Advocacy Relations Associate Director for Rare Disease. This will be a remote role based in Spain and it will report to the Global Advocacy Network Director.Rare Disease, Global/EU Advocacy Relations Associate DirectorLIVEWhat you will doLet's do this! Let's change the world! In this vital role, the Global/EU Advocacy Relations Associate Director for Rare Disease at Amgen is responsible for building and nurturing relationships with global rare disease patient advocacy organizations and contributing to elevating Amgen as a trusted partner of choice for patients and patient organizations across the rare disease community. They work closely with pan-European and local patient advocacy groups as well as with Amgen affiliates in key markets to foster the community among individuals and groups, support educational campaigns, elevate individual patient stories, and champion equitable access to improve health outcomes.The following are key responsibilities and elements of the role:Work with cross-functional global teams to understand global strategy and link to regional and local advocacy strategy.Lead community building across multiple launches in rare disease communities with limited or no dedicated advocacy organizations.Leverage relationships with regional umbrella organizations to facilitate introductions for local affiliates that can help build relationships with ex-US organizations and expand community advocates.Build and maintain long term, substantive relationships with, regional, and country patient organizations and other key stakeholders based on values of trust, respect, and transparency.Lead and manage Regional Patient Advocacy Advisory Panels and Boards.Represent Amgen at regional rare disease advocacy forums and conferences.Support local affiliates in key markets in developing and executing rare disease advocacy strategies based on business priorities.Organize forums to share best practices and high-quality initiatives around shared goals including improving patient empowerment, shared decision making, shaping public policy, and equitable patient access to the appropriate treatments for patients with rare diseases.Bring the voice of patients and advocates with rare diseases to address patient unmet needs and drive patient focused solutions in the design and development of clinical development programs